Just life

Be Aware! Autism!

April is Autism Awareness Month.

 

Remember to be unaware of autism between 1 May and 31 March!

 

Some activists are trying to change the narrative to “autism acceptance month.” I can’t say I disagree, because yes, I am “aware” of autism. I am also aware of rabid dogs, my allergy to orange peel, and of the slugs in our garden. I’d argue, however, that “autism,” as in the word itself, is already widely accepted. Autistic people, not so much.

Among many other fun things, about which I’ll write some other time, autism is a communication disorder.

#ActuallyAutistic people are only acceptable to most neurotypicals (NTs) when our lives are either a motivational “success” story or a tragedy.

 

Autism is accepted when it’s either undetectable or crippling

We don’t understand and we don’t know what we’ve done or what you mean. When we ask questions, we do so to learn how to make you more comfortable. We adapt our behaviour and reshape ourselves based on this feedback. This costs us a lot of energy and destroys our sense of self. If you don’t tell us what you want us to be, we won’t know. We won’t earn the “you don’t look autistic” prize. (I told Husby that the next time we hear this he should say “Bjørn, please perform An Autism for the lady.”)

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Non-Starred Review, or Where Is My Integrity

 

A while ago I decided to stop giving star ratings to books I am reviewing, unless the book is fantastic, 100% worthy of a five-star score, and I had nothing to do with it.

Before I begin: the examples below are all composites, unless I name them.

*****

A few years ago I have read a book that was objectively bad. The heroine’s job, which was so important she met a Scottish farmer at a related conference – the reason why he attended it was unclear – disappeared once she moved into his farm. She didn’t quit the (freelance) job, it just never made an appearance again. The evil ex seemed to pop up when the author remembered she needed to exist, so that the book could be marketed at certain audience.

I loved that book. I thought I wanted to read a Scotsman rom-com. It turned out that I wanted to read exactly what the author has written: a love letter to farming, and not a romanticised one either. It would have been much better, had it not been billed as a rom-com to make marketing department’s job easier.

The writing/editing would earn it two stars if I were in generous mood. And I was! I five-starred it because of how happy it made me. It took me a while to realise that was the same score I have given to the best book I have read in my life, The Hours by Michael Cunningham.

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How to earn a burnout

So I went and gave myself a burnout, because I don’t learn.

I’ve sent the next Why Odin Drinks story to my editor and decided to tackle the genre that I’ve always found the most difficult: romance. I’ve done a lot of reading first, both of craft books and various sorts of other authors’ romances, noting what I did or didn’t like. I settled on sweet (nothing sexual happens on the page) m/m (it didn’t work, gay men have too many cocks to spend the night cuddling without at least one’s interest getting aroused, so it’s sweet-with-heat now). I started writing the first draft and here’s where I made the same mistake I always make: I stopped watching what I was doing.

I can, as in I am able to, work approximately three hours a day. Unfortunately, tasks that for most people are either unnoticeable or, at worst, irritating chores constitute work for me. Folding the laundry; cleaning the bathroom; cooking something more complicated than an egg; taking a shower; often simply reading. Therapy, obviously. Unfortunately writing is also on that list.

It’s escapism, I love doing it, and it exhausts my energy without me noticing, because I don’t want to notice. If you love your work, it isn’t work anymore, we all know that. So I’ve spent two weeks drafting my romance, navigating the complications and changing the plot as I went, and accidentally completing NaNoWriMo (fifty thousand words – an average romance novel clocks at 60-80 thousand) within two weeks. I wrote every day, of course – “you’re only a real writer if you write every day!” Then, to nobody’s surprise but mine, I crashed. Badly.

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I decided to finish \’Children\’ before the end of next week…

…then I went and almost died, which would have been a pretty good excuse had I missed the deadline, but also slightly awkward.

It’s been three days. (Good Gods. THREE. DAYS.) I’m stuck trying to process what happened. Maybe I am over-dramatising or remember some parts wrong because of the fever, I tell myself. Wait, but if I had that much of a fever… well, I didn’t really feel like I had it, so maybe it doesn’t count? Then a realisation hits me: those hours, or maybe minutes, when I thought I was falling in and out of sleep? I was falling in and out of consciousness. The stormtroopers, or whoever they were, might have been very quiet, respectful, and even kinda sad when they kept entering and flanking my bed again and again and again and again… I wonder, was it more minutes or hours? I remember I tried to look and one of them covered my watch, so I couldn’t see. Can a hallucination do that, or was I actually hallucinating my attempt to look, but I actually couldn’t move my hand?

Isn’t this the sort of thing that only happens to other people? I’ve already collected spine injuries, an impressive collection of mental health problems, how about other people take their other people stuff and leave me alone to do boring stuff like finishing books?

CW: The following contains medical talk (I took out the most gruesome bits) and me not dying. It’s also a mess representative to the state in which my mind is as well.

I decided to finish \’Children\’ before the end of next week… Read More »

No, I haven\’t learned any languages this week

I will tell you a secret: the release date I had in mind for Children of the Gods was May 28. I have booked my editor for the final pass at the end of March/beginning of April, the proofreader – first two weeks of April, I have planned to send the ARCs (advanced review copies) to reviewers around April 15-20. I even said the words of doom: “for once, I have realistic deadlines and nothing can go wrong”.

Then 2020 happened and honestly, I have not predicted that when I was setting my totes realistic deadlines.

I am writing this on May 6 [and 7 – Ed.]. I haven’t even finished chapter six (out of ten) yet. Yesterday I thought I was finished, then, a few hours later I re-read what I had written and, uh, it’s not finished. My editor has chapters 1-4. My proofreader, who is an angel, forgave me for not having sent her anything but apologies at the beginning of April. Or May. The banner on my Facebook page says ‘summer 2020’, because September 20 is still summer and I’m trying to think positive.

In the last few days some of the people I know started displaying worrying symptoms. One of them said that it felt selfish to go to a grocery store to buy wine. Another felt horrible for eating sweets all on her own. A few haven’t exercised for a week or taken a shower for three days. This makes them believe that they are practically evil. I told them not to be silly, but I’m all talk and no action – I’ve been feeling horrible about not writing fast enough, so I’ve been forcing myself to work more and faster, so now I can’t write at all. My body and brain refuse to cooperate. Every day I must nap at random times, because my mind just switches off and all I can do is scroll Twitter and click little hearts. I go to bed fully dressed, hide under a duvet and a weighted blanket, and shiver from the cold. Apparently this is normal during endless exposure to stress and anxiety that can’t be lessened by taking a holiday, because taking holidays is currently on the list of things that are even less likely to happen than me winning the lottery.

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Happy Solstice!

Last Christmas

Until the early 2000s, we celebrated Christmas as one big squabbling family. I personally made sure that the TV would stay off. Smartphones weren’t a thing yet. There were always fifteen or more of us, kids and adults from various parts of the country. My uncle would tell fascinating stories about his ulcers – I didn’t mind, it was just good to see him that one time in the year. Some got married, some were heading for a divorce that was not discussed at the table. At the centre of everything was my Grandma. I’d sit on the ground with my chin on her knee and just feel that… that thing that I thought of as Christmas. I did that when I was six and I still did it when I was twenty-something. We were not like a TV family – too much drinking, too much politics, too many ulcers – but even before I turned 20 I wasn’t stupid enough to believe that adverts and movies presented the real world.

Fifteen or sixteen years ago I came out as gay. I was assured that nothing would change, that I was loved as I was, and since I had a boyfriend I thought that meant he’d be treated the same way my cousins’ girlfriends were. My aunt, whose house was the only big enough to accommodate the whole shebang, told me that we were not welcome – it was fine for me to be gay, but only as long as I wasn’t being gay in her presence. That was it. I never even found out whether the rest of the family asked and/or were told why I suddenly stopped appearing.

 

What next?

Our family, with one or two exceptions, considered themselves atheists, but very few people in Poland didn’t celebrate the holiday.  For us, Christmas had nothing to do with the church or Jesus. It was about being together, consuming a lot of calories, laughing at the kids that were nearly unconscious with excitement because there were presents. It took one short phone call – I was only going to ask whether three p.m. was good, or should we arrive earlier or later – to lose all that. I have never seen some of the family members again, those who lived so far away we only ever met on that one occasion. The end of December, however, didn’t get cancelled worldwide to make things easier for me.

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Village people III

Part IPart II

…and after all this fun and games I sort of broke.

Living with an invisible chronic illness that limits your energy means that there are limits to your energy. (In)conveniently, I never remember that until the red lamp is not even blinking in a warning, but is the only part of my body and mind that remains functioning. I can’t rest in advance and I can’t just “push myself”, I know it never ends well when I try, that I must take a break. I even know the definition of insanity. I always do the same thing. I am yet to gain any benefits from that.

Surprisingly, this time was not an exception. I pushed and pushed until I reached the absolute, unbreakable limit, then broke it too. That was it for my participation in the move, as I became a near-literal deadweight. Husby took care of the rest whilst I was plopped on our new sofa, staring melancholically at the garden outside our window. But I did get an unexpected benefit. A magical one.

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Village people II

Part one

I kind of lost track of chronology due to sheer exhaustion, so this instalment won’t be neatly divided into days of the week.

My dear friend G arrived on Saturday and ensured that I will remain grateful forever by offering to paint ceilings. My spine makes various things impossible – painting ceilings is one of those things. So I spent the first few hours tearing off the remaining wallpaper in the living room. Finishing the task coincided with G and Husby beginning to sand various parts of the room, which created so much noise that I ran upstairs and made sure not to get any rest anytime soon. Some wallpaper there was coming off, so I grabbed a corner, thinking about nothing in particular, and pulled at it.

Old Vumman, as it soon transpired, had three hobbies. One was placing motivational texts along the lines of “If you dribble when you piddle, be a sweetie and wipe the seetie” (yes, SEETIE) everywhere. Those are gone by now. Another was putting nails in every wall, at random spots and random angles. Those are mostly gone. The third hobby, however, was wallpapering. The living room had one layer. The gym room and my future office had six. Using the steamer helped only partly, because the last layer was something between plastic and paper, just thick enough to refuse to come off, and just paper-y enough to tear off some of the wall, which is made of something that may or may not be cardboard. If I had known, I wouldn’t have pulled at that corner, just tried to glue it and told myself that I adore Old Vumman’s wallpaper choices… but… well. See the picture above to get an idea how far I got after two days of doing this. Layer four was actually quite pretty, looking as if some graffiti artists came over, sprayed paint in the air, then sneezed (many times), but all of the many wallpapers formed a semi-whole that would neither come off all at once nor one layer after the other.

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Village people

Photo: my birthday party. This is not the final decor of the living room.

We’ve now officially moved out of Amsterdam. The place where we now live, Almere, is a small-ish suburban-ish town-ish – I’m going to tell everyone it’s a village, because I like the idea of living in the countryside more than in the suburbs. It most probably isn’t because “Town-ish people” wouldn’t make a very catchy blog post title. Most probably.

 

Thursday, Oct 3

A day of two very important events: my 42nd birthday (and as we know 42 is the answer to life, the universe, and everything) and the house keys being passed from Old Vumman to us.

The Old Vumman proved not to be all that old and not half as weird as we expected her to be. She was actually quite nice and a bit talkative. The proceedings began with her wishing me a happy birthday and handing us a pot of chrysanthemums (which in Poland are a funeral flower). This was the last bit I really understood before she launched full-speed into explanations of something. Husby listened and I sort of let the word-flood wash over me, until I caught something that kept repeating. Cliquot. Cliquot. Cliquot. What can she possibly mean, I wondered, then she briefly slowed down just enough for me to understand that it had to do with rubbish. Did the rubbish collectors expect only top quality drinks handed to them as… uh… tips…? Later Husby explained to me that she was actually saying “clicco”, because the rubbish bins, when they’re being dragged to the pick-up spot, make a click-click-click sound… Ah. Obviously.

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Real life is happening

I’ve been quiet. I haven’t been posting quality content which could go viral and make me Internet-famous, possibly an influencer, advertising… uh… trips to Iceland at €1 million per sentence. Husby and I were busy with real life. In a nice way.

Surgery Battle of the month!

It looks like my fifth (I couldn’t figure out whether it was fourth or fifth until I counted the anaesthetic injections – you don’t forget injections in your eye socket easily) plastic surgery might be a success! Knock on wood. Hopefully I can do a visual newsletter again in a month or so. My modelling days are behind me – although never say never – so I only have to worry about never forgetting to wear sunglasses when in public. Also, I’m not sure why I tell people the truth when they ask me whether I was in a fight… Wait. YES. I forgot. It was an epic battle. I have slain dragons, then eaten their still beating hearts. I sat on the Iron Throne and shook hands with the Gods. (And with Cersei Lannister.) So much blood was spilled that I could extract iron from it, then forge a sword out of it. And I only got one wound!

The depression calmed down. Possibly because I was too busy. Since we also bought a house.

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